Leyla Association
A cause I deeply care about
In 1995, I lost my mother, Leyla, who passed away at the age of 48 due to amyloidosis, a rare and orphan disease. This tragedy left a deep mark on my life. Faced with a sense of helplessness, I chose to transform that pain into meaningful action. That’s how the LEYLA Association was born in 2007, in Bernin, Isère — a tribute to my mother and a commitment to the fight against rare diseases.
The LEYLA Association is dedicated to supporting research, education, and scientific training related to rare and orphan diseases such as amyloidosis. We award scholarships for theses and doctoral studies focused on these conditions, and we also fund projects led by other organizations committed to this cause, including Solident, Force Hémato, and the endowment fund of the Grenoble University Hospital (CHU).
Our scientific committee carefully selects the projects we support, ensuring they have a meaningful potential impact for patients. Since 2017, we have expanded our support to other structures that share our values, thereby strengthening our commitment to research and to supporting those affected by rare diseases.
Join us in this fight. If you would like to learn more or support our mission, feel free to contact us:
LEYLA Foundation
Parc Activillage des Fontaines
38926 Crolles Cedex, France
I was furious at this disease and I still am. It became a personal mission.
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